Wednesday 6 April 2011

Seizure later.

So we have an appointment with the Neurologist dude at the Children's Hospital tomorrow.

Last year, Louis had a sleep EEG because of suspicion of nocturnal seizures. It came back abnormal suggesting focal seizures.

Then at the next appointment, the neurologist said checked out Louis and said he looked all good and that the seizures were probably abnormal brain activity because he is autistic.

Okaaaaay.....

He left the appointment saying he hadn't seen Louis' sleep EEG. He would look at it and on the off chance there is something to be concerned about he would organise us another appointment.

Well, his secretary rang a couple of months ago saying he wants to see Louis again.

So, going in tomorrow with not much idea what is going on, or what to expect. I am not particularly concerned. Louis is doing really well and the jerking and twitching has not become worse. Sound like mother of the year don't I?!

I do want to ask him what the hell to do about Louis not sleeping. Seriously, he is sleeping about 4 hours a night at the moment. I am going insane. Hubby is taking the shift tonight, so that I can be lucid at the appointment tomorrow.

Let you know what happens.

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